At the risk of losing a few readers who rely on me for gluten-free and allergy-friendly wisdom, today I’m coming clean.
Ready?
An Allergic Foodie has made some mistakes. Some really, really bad mistakes.
To my defense, that little piece of paper the allergist handed me listing twenty foods that may contain gluten was a joke. Please also keep in mind that in addition to having to eliminate gluten from my diet due to celiac disease, I am also allergic to soy, dairy, corn and a host of other foods and spices. (Like vanilla and nutmeg. Who’s allergic to vanilla and nutmeg?)
Eliminating multiple foods from one’s diet is NOT easy. Especially when you don’t have any nutritional science background (unless you count several attempts at Weight Watchers) and your cooking skills involve opening a box and adding water.
Here are a few of my favorite blunders (I find it fun to sing this line to the tune of “Here are a few of my favorite things”):
I thought “Wheat Free” meant “Gluten Free.”
Yes, I ate several packages of Newman’s Figs before realizing they were full of gluten. I mean if you can’t trust Paul Newman, who can you trust?
I followed the three-second rule: “Those croutons were only on the salad for three seconds!”
Doesn’t matter! A nanosecond of cross-contamination will make me sprint to the restroom as if my feet were on fire. By the way, at Outback Steakhouse “Sheilas” means ladies’ restroom–found that out the hard way.
Didn’t know that spelt was gluten.
The week I found out I had celiac disease I bought a big loaf of spelt bread. After all, it wasn’t “Wheat Bread” so it must be gluten free. And it tasted like cardboard, so it must be gluten free. Spelt caused me to crawl under my bed for seven days. Not exaggerating.
Didn’t know barley was gluten.
Put this soup on your MOST NOT-WANTED LIST. Do it now.
I skimmed ingredient lists.
This was back in the days when I thought I could buy foods that contained more than five ingredients. I also hadn’t yet accepted that I needed reading glasses (now I keep a magnifying glass in my pantry!). I also hadn’t gotten my PhD in nutritional studies. Okay, I still don’t have a PhD, but I think I’m pretty darn smart about food allergies and celiac disease. Read my post What Is This in My Food?Maltodextrin. Smart, huh?
I was shy in restaurants.
I’m an introvert. I don’t like to make a fuss. I don’ t like to draw attention to myself. These are not good characteristics for someone who eats out a lot and has many special dietary requirements. Here’s how I ordered the first few times I ate out after diagnosis:
“Just bring me a vegetable salad with olive oil and lemon, no bread, no croutons.”
Here’s how I order now:
“I have allergies and celiac disease. So no gluten, wheat, soy, dairy, or corn. Did you write that down? Let’s see, I’ll have the burger with no bun, no cheese, and please don’t cook the meat in butter, and use a piece of foil on the grill. And can you make sure the fries aren’t cooked with other fried foods, or in corn or soy oil. If it says vegetable oil, it may be soy oil. Read the label. Do you make your catsup in-house? I can’t have corn syrup . . .” You get the drift.
I paid a “Wellness Coach” $500.
C’mon, who wouldn’t pay $500 to rid themselves of multiple food allergies and celiac disease? After my first appointment, I got home and checked the ingredients of the Miracle Shake that was going to cure my leaky gut. Contained gluten and vanilla! I’d been scammed! Any one out there interested in buying a case of a Miracle Shake that will cure your celiac disease and/or food allergies? I’ll throw in the box of Magnetic Clay Detox Bath Beads that will also rid your body of evil toxins. (Note: There are some good wellness coaches out there: just make absolutely sure she/he is qualified and has a background in food allergies and celiac disease.)
I stopped drinking vodka.
Stupid, stupid mistake. People who I called friends told me vodka was made from wheat, not from potatoes as I’d always thought, so I tearfully said goodbye to martinis. But then I read on a reputable website that distilled liquor was okay for celiacs. Hooray! I celebrated with a Cosmo or two or three (I know, Cosmos are so outdated, but I just can’t find a martini I like better. Suggestions?)
A side note: Chopin Vodka is made entirely from potatoes and has become my vodka of choice. (Okay, so maybe I didn’t give up ALL vodka in those early days).
I’ll stop here because the experts say blog posts should be kept short to retain reader interest. The point to my admitting these early-diagnosis mistakes is this: Learning to live with celiac disease and food allergies takes practice, patience, perseverance and maybe a pair of reading glasses. But in time, you will become a pro–and you will start feeling good!
If you liked An Allergic Foodie Admits Mistakes, you may like To Eaters of Everything and What Restaurants Did Wrong in 2013.
An Allergic Foodie Admits Mistakes originally appeared at Adventures of an Allergic Foodie.
Thanks for the memories! 😀 NEVER try a garlic martini! I made one once for a project, and it’s enough to put you off drinking for ever. I miss the whisky, and the beer, especially on really hot days.
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Garlic martini? Yuck! 🙂
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Reblogged this on GlutenFreeGal.
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Thank you, Kirsten! And thanks for all YOU do to support those of us with food allergies and/or celiac disease!
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You are welcome. Great post!
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Who of us with food allergies haven’t made mistakes. I have missed an item that was clearly on the label and paid heavily for my oversight. I have bought a product without checking to see if any of the ingredients have changed (trying to do better with that).
Thank you for the wonderful reminder to us all that we are only human and despite our best efforts, we make mistakes.
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Don’t you hate it when they change ingredients!!!! My most favorite sorbet was made in Colorado and was safe for me. A company bought them out and added “egg white” to the ingredients. I cried.
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Great post! Just shared it on Facebook!
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Thank you, Jodi, I appreciate you spreading all the stupid things I did early on! 🙂
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BROWS = barley, rye, oats, wheat and spelt… a good way to remember what you can’t eat 🙂
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OMG how come nobody told me this before?!?! It could have saved me from a year of living in the bathroom. I’m tweeting this right now . . . giving you credit, of course.
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My nineteen year old told me this one… and he is not my coeliac son.
Easy to remember.
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Hahaha! I love this list! I’m sure none of it was even close to funny at the time, but it’s good to be able to look back and see how far we’ve all come. 🙂
When I had gotten my celiac blood test back but hadn’t yet done the endoscopy to confirm the diagnosis (and was continuing to eat gluten), a friend had me over for dinner. “It’s gluten-free!,” he said, proudly serving up a bowl of mushroom-barley soup. Whoops! Wonder why that’s always the one people forget…
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Thank you, Molly. And you are right: It’s nice to be able to look back and laugh. For those in the early days, it WILL get better. 🙂
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Oh—another mistake I didn’t make myself but that I must say I find amusing is assuming that “couscous” is a grain in its own right, and a gluten-free one to boot. I’ve heard that one multiple times.
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Oh yes I’ve had arguments in restaurants about couscous–chefs insisting it is okay! Lundberg has a GF brown couscous that’s pretty good.
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Oh my gosh, this post had me laughing! Why? Because I can relate to *so* many of these things! While I do not have Celiac, I have several severe food allergies and the amount of diligence it requires is off the charts. So glad we can support and commiserate and laugh with each other!
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Glad I could make you laugh, Kate! 🙂
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Thanks for being so honest and sharing your mistakes with others! Its a great way for others to learn, so your mess-ups weren’t for nothing! We all mess up at times. I’ve been doing this for over 10 years and it still happens to me too 😉
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Thanks, Jeff. Ironically, I got glutened last night and am suffering today. Ugh. And the restaurant seemed to take great care. I suspect it was contamination on a grill. Sigh.
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A gimlet is great with potato vodka! It’s nowhere near as sweet as a Cosmo but it’s “grown-up.”
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